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CFIDS is another way of saying CFS or chronic fatigue syndrome. CFIDS stands for chronic fatigue immune dysfunction syndrome, which many feel is a more accurate name – at least in the United States. The rest of the world calls chronic fatigue syndrome, ME or myalgic encephalomyelitis. It seems to me that a name defines an illness and determines how seriously physicians take the patient, not to mention the rest of society. But that is a topic for another day.
The next few days I am going to be talking about awareness. Awareness of CFS, CFIDS, or ME is one of the most important things that needs to occur in order for research to be done about this disease.
May 12th is THE day for CFS awareness and there is going to be grassroots lobbying and many ways that each of us, here online, can get involved as well. If you have a Web site – you will have a chance to be active in helping those who go to Washington.
Awareness is our most important issue. It is the foundation that all of our other issues will be built on. Check in with me – over the next few days you will have the information you need to join in on the effort.
By the way, did you know why May 12th was chosen? It was chosen in honor of Florence Nightingale. May 12th was her birthday and it is believed that she had what we now call chronic fatigue syndrome.
dear friends,
my name is tony, i’m 31 and i’m italian. I’ve been suffering of cfs in the past 6 years and since i begin to feel better i’d like to share my experience with whoever wants it.
My first approach to cfs was to sruggle against my condition, trying to make it as everithing depends on me, and so a loose many monthes in testing my strenght but althought i acquired a very good self-confidence on the other hand, I seriously inflicted to my nervous system a bigger shock so that in reality my phisical condition where going always down….very downn.
Then I realized that it was only accepting my condition that a good health may be return in my everyday life. So i had to tell everyone how i really felt. (most of them made jokes or they thought i was a self-complaining one. That’s not important.)
Then i started to reorganizing all my day-time in a way that my reduced bio-rithm would not suffer.
I used to eat small dishes but 6 time a days but more then evreithing else i allowed to my self to sleep most of the day without feeling guilty.
All my responsability was to feel alive in a way to regain good condition but not forcing anything it was just a spiritual condition of opening to everithing it would come. A sort of very deep living that is very lonly but very effective to succed.
It has been very hard at the first period but then something started to happen i discover that my body-mind system was taking care of me better then i may do. My only occupation was to do not disturb this process of regeneration that was taking place as a sort of mistical nutrition.
In this moment i begin to evaluate seriously my ” F A T I G U E” not as an enemy to defy but even as a strategy that my true nature was adopting as an ultimate measure to riestablish all my person in a balanced biological position.
And that’s it… I don’t know if anyone would find true benefits from these words what i certainly belive is that I would certainly beneficiated of them some years ago.
May everyone find their home or a new one…
bye to all
tony