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Tue, Apr 3 2007

Guess Who’s Speaking on Oprah?

Ubiquity is defined by one source as “presence everywhere or in many places especially simultaneously; omnipresence”; according to another source, ubiquity is “the state of being everywhere at once (or seeming to be everywhere at once)”—sort of like Santa Claus on Christmas Eve, I guess one might say.

It has not even been one week into Autism Awareness Month and already there has been quite a bit of “presence” and “awareness” about autism in the form of Autism Speaks, and in particular in the person of its co-founder, Suzanne Wright. Having been on the Larry King Show on the 22nd of March, she will make another TV appearance two weeks later, on the April 5th Oprah. Mrs. Wright’s daughter, Katie Wright, and some of the other autism mothers in the Autism Every Day video will appear (go here for more details).

The Oprah show is entitled “The Faces of Autism”; many parents, professionals, and others have been leaving messages. It would be well to see their faces on TV in addition to that of the Wrights (who one can, of course, see readily via the Autism Speaks website, the April 1st New York Times Evening Hours column, etc.). Some autistic teenagers are to be on the Oprah and, it seems to me, it would be well if more of the guests were autistic persons.

Nonetheless, I am not surprised about the roster for the upcoming Oprah. I addition to, of course, the Autism Speaks website, the influence of Autism Speaks can be felt extensively over the web, its light blue puzzle piece logo prominently affixed to (for instance) the site of the recently launched Interactive Autism Network. It just occurred to me that the middle column on this blog is of a very similar color to that Autism Speaks puzzle piece, and I wish to point out that I did not choose that color with any thoughts of said puzzle piece in mind; I chose light blue because that is the background color for my Autismland blog and the color reminds me of the ocean and a clear blue sky, both of which appeal much to Charlie.

In the upcoming weeks, the colors and design of Autism Vox will be changing (I’ll leave you to guess what colors I chose……). Autism Vox will be quite the same, just with a different look:

Sometimes a little change, of colors, faces, presences, can offer a novel perspective.

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Comments

  1. By charlotte Clements

    please send me Jenny McCarthy email address
    she talk about

  2. By charlotte Clements

    Could you please send me Jenny McCarthy email
    address.
    About Autism

  3. By Brian Noakes

    please note correction on previous comments SONRISE.ORG should actually beSON-RISE .ORG sorry for the error

  4. Trackback
    1805 days ago
    Katie Wright Does Not Speak for Autism Speaks

    [...] wonders if some eyebrows have been raised in regard to Katie Wright’s statements regarding vaccines as causing her son’s autism and her references to using biomedical treatments? ASD, Aspergers, autism, [...]

  5. By sekou

    Big O,je t’informe que j’ai donne ton nom a ma fille qui est nee en Novembre 2006.S’il te plait Oprah repond a mon email,je souhaite te rencontrer pour te presenter l’enfant.
    Que Dieu te benisse a jamais

  6. By shana

    i have a eleven year old daughter with autism. even though i know she needs me to learn, after eleven years, i truly believe i need her, more than she needs me. i would not change a thing. im not saying its not been hard. but she is worth every worry,heartache, tear.. for every one of those, i get a thousand hugs, kisses, smiles, and love. i was given an angel that needed assistance. turns out she has taught me more than i could ever teach her.through our life were taught to look from the outside in. ive learned autistic children look from the inside out. and what they see is totally diffrent from what our eyes see. she has taught others as well as myself patients, understanding, unconditional love, true dependence. and that alone we all know is a awesome feeling, knowing that your child trust you even though she doesnt even understand what is going on. i thank god everyday for my daughter. i do believe this world is a better place because shes here.

  7. Trackback
    1839 days ago
    Autism Vox » Where Would You Choose to Live?: Q & A with Mom-NOS

    [...] we bought thinking we’d live in it for thirty years, just like that father at the end of the Oprah show on autism who talked about having to sell his house and move in with relatives and how he just [...]

  8. Trackback
    1849 days ago
    Autism Vox » Play Date with a Friend; or, What We Need

    [...] legislation for $350 million for treatment and support for autism in Washington. Autism was on Oprah. Autism was on the CBS Early Edition. There are more and more books and films. There is a [...]

  9. By Kristina Chew, PhD

    Thanks, Monika—-another question if I may ask: What kinds of schools or educational resources are there for a child like John? Great to hear from you!

  10. Trackback
    1861 days ago
    Oprah's Autism Special « The Life That Chose Me

    [...] Head over to Kristina’s site for an the Oprah show overview. [...]

  11. By Kristina Chew, PhD

    So far it looks like Oprah “many faces” are more of the same—-an Autism Speaks VP is shown on the website with her daughter—–

  12. By Kristina Chew, PhD

    The task ahead is, I think, to figure out how to keep on getting a different portrait of autism out, whether on Oprah or not— I think a positive portrayal could most certainly have been possible!

  13. By Laura Cottington

    Wow, Autism Speaks and Oprah can get a chat going! Been out of town a few days and came back to find out about Oprahs show being on already, just yesterday. I put a quick blurb about Oprah on my post and saw Harpo had visited my site early this morning. I am actually hoping it wasn’t from the link, because I too sent an e-mail two weeks ago when I heard she was thinking of doing a show, and had asked that she portray it from the side of autistics, and that she should perhaps have a child, teen and adult with autism on the show to have them share “in combination” with the parent, for those that would need assistance ( not soley the parent’s view). To no avail, the blue pin people used their financial influence to get in the door first! Rrrrggg. Anxious to see how it is all portrayed today.

  14. By mumkeepingsane

    I can’t even bring myself to watch Oprah today. I wanted to blog about this but couldn’t even put my pain and frustration into words. That’s my child they’re talking about, my child they’re reducing to a series of negative behaviours, my child they want to “cure”. I cried when I saw the advertisement for this show (and I’m not an emotional gal).

    I’m planning to email her but am sure I won’t get a response.

  15. By Monika

    Hi Kristina,

    German media focuses very much on autistic people with extraordinary abilities. Children with severe Early Childhood Autism (like my son John) are very seldomly portrayed in German media…

    Greetings from Europe!

  16. By Chris

    ohh and i am going to check out the teach video web sight

  17. By julie

    Chris,
    I could not have said it better myself.

  18. By Chris

    I e-mailed Oprah about this along time ago when chicago had a huge conference. I did not get a responce either—shocker.
    I would love to share with her the growth and love, and the hummor, we are all getting as a family.
    We have our struggles with finding resources, and the loop holes of the politics surrounding autism. But we are also a family and we live everyday, and learn everday. We laugh most days, we struggle at times, but most times life is life, and it is great!

  19. By Chris

    I e-mailed Oprah about this along time ago when chicago had a huge conference. I did not get a responce either—shocker.

  20. By Kristina Chew, PhD

    Thanks for the TeacherTube link!

    Would love to know the reaction to The Many Faces of Autism, Daisy and if you hear anything from your email, Estée.

    I gather that some others with a different view of things attempted to get on the show, too.