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Mon, Oct 20 2008

Newsweek Q & A on Autism and What John McCain Said

I was interviewed by Claudia Kalb in a web exclusive for Newsweek:

Spotlight on Autism: The mother of an autistic son reacts to John McCain’s recent pledge to help families like hers. Was it just rhetoric?

More about McCain’s comments about autism in the debate last week here.

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Comments

  1. By Thrifty Karen

    Congrats on the interview.

    I agree with Dadof6AutisticKids. Government mandated vaccinations cause me to worry too. You can say that medical evidence is pointing away from an autism-vaccine link, but the proof still isn’t there. Government mandated vaccinations should cause us to be concerned.

  2. By Regan

    “Some cause happiness wherever they go; others, whenever they go.”
    Oscar Wilde

  3. By Kristina Chew, PhD

    @Joe, thank you so much for reading and letting me know what you think.

  4. By Joe

    What about your comments about Palin?

    Good luck to you Dr. Chew…. I wish you the very best and the same to your family.

    In the future, keep your gratuitous swipes at people with true character (Palin and McCain) to yourself.

  5. By Kristina Chew, PhD

    @Joe,
    Please note that your responses to some commenters, as to the commenter Another Voice, are very discourteous.

  6. By Joe

    My last word to all of your poor pathetic parents of autistic kids ON THIS BOARD. Palin loves her son. She will walk to the ends of the earth to help him and other kids with disabilities including yours.

    Do you really think she is using her son’s condition to get elected? Do you really believe she will be less enthusiastic in her efforts if she is not?

    Give this honest, genuine woman just a fraction of the worship you give to your Messiah.

    Now crawl back into your caves and continue the self loathing you have perfected as “caring” parents of autistic children.

  7. By Peggy

    Great interview! I’m certainly not impressed with how Palin seems to want to use her kids to help the campaign.

  8. By Emily

    “Emily,

    Please write your note with a little more civility. It is obvious that the scars of lifellong ugliness have left many scars. Palin is hot. You are not.”
    Heehee. You are such a hoot. You ask me to be “civil” while describing me as having “scars” (how…did…you…know?!?!? hahahaha!) and deciding that I’ve suffered from “lifelong ugliness.” If that’s how you “do the civil,” here’s my response: Even if I had been outwardly ugly all of my life, I can assure you that it’s preferable to the pitiful, tiny, ugly inner life that lies shriveled up in your dried up little soul. And Palin still dresses like my grandma.

    “GET OVER IT.” okey dokey

    “You want Obama because Big Brother will cure all of society’s ills. You and other libs on this Board will be sorely disappointed. Live and learn people.” I don’t recall having said one thing about Obama. And if I remember correctly, it’s the “true believers” on the right who are all into the Sky Daddy thing.

  9. By Another Voice

    Joe

    I felt voting for McCain was just like voting again for Bush. Sorry I didn’t make that clear enough for you.

  10. By Regan

    Those of you who advocate for Obama are just predisposed to vote for him anyway

    Maybe…and maybe not. Apparently those who may are not all born and bred kneejerk “socialist, liberal Democrats”,
    A Conservative for Obama
    Wick Allison- Former publisher of the National Review

    Other conservatives and Republicans who support or have written favorably about Sen. Obama, and have some conservative street cred and knowledge of politics,
    * Andrew Sullivan, Columnist for the Atlantic Monthly
    * Colin Powell, Secretary of State under Bush 43
    * Christopher Buckley, Son of National Review founder William F. Buckley & former NR columnist
    * Wayne Gilchrest, Congressman (R-Maryland)
    * Elizabeth Drew- author of the pro-McCain book, “Citizen McCain”
    * Jeffrey Hart-Senior Editor of the National Review
    * Larry Hunter, Former President Reagan Policy Advisor
    * Peggy Noonan, Former President Reagan Speechwriter
    * Andrew Bacevich, Professor of International Relations at Boston University
    * Douglas Kmiec, Head of the Office of Legal Counsel under Reagan & Bush 41
    * Jim Leach, Former Congressman from Iowa
    * Lincoln Chafee, Former United States Senator from Rhode Island
    * Richard Riordan, Former Mayor of Los Angeles
    * Lowell Weicker, Former Governor and Senator from Connecticut
    * Jim Whitaker, Fairbanks, Alaska Mayor
    * Linwood Holton, Former Governor of Virginia
    * Jackson M. Andrews, Republican Counsel to the U.S. Senate
    * Susan Eisenhower, Granddaughter of President Eisenhower & President of the Eisenhower Group
    * Francis Fukuyama, Former advisor to President Reagan
    * Rita Hauser, Former White House intelligence advisor under George W. Bush
    * Bill Ruckelshaus, served in the Nixon and Reagan administrations
    * Ken Adelman, served in the Ford administration
    * David Friedman, Economist and son of Milton and Rose Friedman
    * Michael Smerconish, Columnist for the Philadelphia Enquirer
    * Robert A.G. Monks, Attorney
    * Don Kaul, Intellectual Property Attorney and Arts Patron
    * Richard J. Schwartz, Chairman, New York State Council on the Arts
    * Todd Garrett, retired Senior VP and CIO of the Procter & Gamble Company
    * Richard B. Stewart, Assistant Attorney General for Environment and Natural Resources
    * Ambassador Thomas Graham Jr., Executive Chairman of Thorium Power Ltd.

    For additional man-on-the-street points of view from conservatives, see the comments in the Wick Allison article.

  11. By Joe

    Note to “Another Voice”:

    Newsflash: Bush cannot run for President for a 3d term. You have no reason to fear that you will do something stupid like that again….but you will do something stupid like that again.

  12. By Joe

    Emily,

    Please write your note with a little more civility. It is obvious that the scars of lifellong ugliness have left many scars. Palin is hot. You are not.

    GET OVER IT.

    You want Obama because Big Brother will cure all of society’s ills. You and other libs on this Board will be sorely disappointed. Live and learn people.

  13. By Emily

    Hi, Joe! Since you’re so much enjoying your trolling, I thought you might address this one: How can someone spend $150,000 on clothes and makeup and still look like she spent $150? And more seriously, gee golly whiz, what could $150,000 do for a family with special needs? Maybe that “charitable donation” of the clothes will go specifically to a special needs nonprofit? I’m surprised they haven’t pander …er … remembered that that was their plan all along.

    Mmmmmmrowwrrrrrrr! (That’s a cat sound, FYI).

  14. By Another Voice

    Joe,

    I voted for president Bush. You have no idea of how badly I feel about that. It won’t happen again. Take your “maverick” with his 90% obedient record to Bush and enjoy.

  15. By Joe

    http://www.themediareport.com/oct2004/edwardsreeve.htm

    Democrats are professional panderers.

  16. By Emily

    Siliconmom, exactly. I seriously doubt ANYONE who is president of the United States in these times is going to be paying a lot of attention to the needs of special needs. I can’t quite figure out why they’re so focused on it, which is something they’ve been trying to articulate well before Palin entered the picture. It’s not like special needs parents or people are an enormous voting bloc. And as you say, it is up to those of us who can advocate, either on behalf of ourselves as adults, or on behalf of children and other populations who cannot self advocate–we must do these things locally because any kind of sweeping national change is unlikely. And I’ll talk to anyone who has the power to make change–if I think that such talk will have a practical outcome.

    Joe, ya genius, it was CHRISTOPHER Reeve.

  17. By Joe

    Siliconmom nails it.

    Those of you who advocate for Obama are just predisposed to vote for him anyway….he can do no wrong. He will be there for you and everyone because Obama is your saviour. He promises to redistribute wealth, to cure autism, …..

    Be realistic people. Remember when John Edwards warned that a defeat of Kerry would delay a cure for spinal cord injuries. He even promised to heal Steve Reeves (Superman).

    My problem with Dr. Chew’s bias is that she really did use her own child to advance a political statement knowing that NEITHER candidate can offer a cure. She expects McCain to have spoken about all aspects of this problem but does not hold Obama to the same standard. As I said before, with the exception of Obama’s promise to create a Federal Oversight office to monitor disbursement of allocated funds (something the GAO does already) both candidates have said exactly the same things about autism.

    MCCAIN WILL WIN!!!!

  18. By siliconmom

    Unfortunately, it won’t be until after the election that we truly see where either candidate stands on the issues of special education, research and support for special needs families.

    Sincerity has little to do with it, in my personal opinion. Our country faces many issues and whoever is elected president is going to have to prioritize those issues in order to serve ALL the citizens of the United States. I would love to see Special Needs at the top of that list, although to be honest I don’t see how it can be given the other issues we currently face.

    In the meantime, I will continue to advocate for my children and for other families like ours by working in my community and encouraging my elected representatives to address special needs interests, regardless of that rep’s party affiliation.

    The bottom line – we’re all in this together working towards a common goal. We all want what’s best for our children, whether they’re infants or adults. I would encourage people not to lose sight of that.

  19. By Emily

    Joe, you’re perseverating. How very…well…we know. Also, you’re a hoot. Keep it up because this has me laughing my tookus off. Speaking of which…

    Asman…is there anything wrong with having a “disability”? I wasn’t aware that there was. People with disabilities earn their livings just as people who allegedly don’t have disabilities do. Of course, I think everyone has a disability of some kind, but I’m sort of a literalist. What in god’s name Kristina’s job in academe has to do with anything is beyond me, but you surely are aware that these are not the only jobs that are salaried, rather than paid by the hour. Good luck with that lawsuit.

    Regan, you never cease to amaze me. I do NOT know how you maintain that equanimity. It’s just awe inspiring. Perhaps in my next life…

    Kristina, you know you’ve made an impact when you’ve managed to get my husband’s attention. He actually said to me last night that he’d read your interview. Nice work.

    And last…and again…a temporal association does not causation make. Onset for established genetic disorders such as tuberous sclerosis and Rhett’s easily coincide with specific timepoints on the vaccination schedule, yet vaccines have nothing to do with these manifestations; developmental stage does. It’s pointless to cite a temporal coincidence–and an anecdotal one at that–as support for this “argument.”

  20. By Kristina Chew, PhD

    Here’s KRNV.com on Palin advocating for children with autism and unable to give plan specifics:

    Alaska Governor and Republican vice presidential nominee Sarah Palin says autism is an issue “near and dear” to her heart and she can’t wait to get to work helping more than 5,000 Nevada families affected by it. However, when pressed, she was unable to provide details on a plan to do that.

    “We want to give every child a chance,” Palin told News 4′s Shelby Sheehan in an exclusive interview during a campaign stop in Reno on Tuesday.

    Palin’s running mate John McCain said in the third and final presidential debate, “We must find out the cause of autism and help those families dealing with autism.” McCain also promised to freeze all unnecessary spending in the federal budget.

    Palin says it’s possible to do both.

    “It is a smart thing for John McCain to say we will have a federal freeze on spending except for those things that are vital for government.” she said.

    “There are a lot of wasteful expenditures in the federal (government),” Palin said. “Let’s get rid of those and put them into strengthening NCIH (National Council for International Health) and these other areas where we can help our kids with autism.”

    Palin did not name any specific expenditure she wanted to cut in favor of funding for autism research or services, nor did she name what specific programs she’d like to fund in order to help those families.

    Interesting that resources for autism are being spoken of as “vital for government.”